Privacy when receiving mental health treatment: My tired theme of professional boundaries with a new twist of opening up a little

I’m still dealing with figuring out what to do with my therapy situation. Things with therapist #28 are still not working and I’ve given it beyond what I think is a fair chance. I think I might have generated a working plan, but first a little about stuff that happened in between.

I opened up a little and surprised myself

My academic advisor met with me this week and asked if I was okay. I tried at first to give a vague, ‘there’s a problem but I’m fixing it’ type response but ended up sobbing in her office. I’m shocked with myself about how much I said. In reality I actually provided very little information but it was far more information than I’ve shared with anyone who knows me academically or professionally. I shared that I am having trouble with my new therapist, that I had a confidentiality issue in the past and alluded to a problem of firing therapists and having gone through a lot of therapists. For those who have maybe not read other posts in my blog, that is a giant thing for me to share. I shared nothing about the specifics of my psychopathology, but shared about the extent to which I have received treatment. This is something I don’t talk about with people.

I’m so concerned about keeping personal and professional separate. I realized this was the first time I ever talked to someone who is part of my professional work about this dilemma of treatment vs privacy and boundaries. Of course I’ve talked to my therapists about it, but the issue never quite sinks in properly. They are in my field but not my exact professional context. They also can’t fully understand my concerns about confidentiality because they all think they they personally would never do anything to compromise it. They lose the bigger picture somehow.

Confidentiality and risk

It was helpful to hear my advisor validate that confidentiality breaches are a thing that happen even though people don’t like to talk about it. It makes me realize how much of my therapy (even my good therapy) over the past 6 years has put the problem on me (for my reaction to it) and pushed aside the reality that it is a thing that occurs. It hasn’t necessarily been denied, but it has certainly been sidestepped. Certainly my reaction is excessive, I won’t deny that. But I am also reacting to a real risk, even if my response to that risk is too big. In a way I wonder how much of this sidestepping is a process that makes me feel more like I need to respond dramatically. If everyone else is sidestepping it then it is all on me to protect myself from it since no one else is handling it.

I want to put an example of this into another context. Suppose someone had a snake phobia. Let’s say everyone around this person loves snakes. Some even have pet snakes. Everyone is telling the person with the snake phobia that their reaction is out of proportion with the situation. But some snakes can be dangerous. Not always, but it is a possibility. It might even be hard to distinguish between safe ones and unsafe ones. So this environment might make the person with the phobia even more likely to take excessive measures for safety. On the other hand if people acknowledge risks but instead teach the person how to identify types of snakes and how to handle risky situations should they arise it could create support and provide tools to deal with real risks in a way that is appropriate to the situation.

I had this realization that for all the time I’ve talked about privacy concerns in therapy. No one had ever before talked to me about realistic suggestions to manage real risk. Both of confidentiality and of simple professional boundaries (I can’t be in therapy with a professor who teaches in my program for example). I think everyone has been so scared of introducing more ways for me to avoid risks that no one has helped me assess how to handle the risks that really do exist. Most fears have some kernel of reality behind them. It’s part of how they are maintained. But something about my anxiety being so connected to the process of therapy I think has made people respond to it differently than they might with other types of anxiety.

It was wonderful to share a little about that with someone who is really able to get the context I am working within. And it was nice to get some empathy about how difficult it can be and perspective on an approach I may have been overlooking. She said some things I have heard from other people but those things cary more weight when said by someone who is in my context.

Unexpectedly helpful

The conversation also really highlighted how bad things are with #28. My interaction with my advisor was this beautiful interaction with a mix of validation and goal directed conversation interspersed with appropriate humor and joking.  On some level I feel very guilty for letting this bleed into my professional life. My advisor is a therapist but not my therapist. But she basically did far more to help me in 15-20 minutes that my actual therapist has done in the past month. The conversation made me think about some things in new ways and reflecting on it has helped me generate some new possible solutions to me problem.

I need to make sure I keep our professional boundaries in place, but it’s good to know that I maybe don’t need to be as scared if the mask of normality I hide behind slips a little sometimes in her presence.

The new plan

It’s taken several days for some of the conversation with my advisor to sink in fully enough to help me generate a new plan. I am not sure if my plan will work. But having a plan is giving me that glimmer of hope that I need.

Something clicked for me last night after searching for hours for a psychiatrist and not finding anyone who met my criteria.  I finally came up with a plan. My plan (which may not work at all) is PsyDs and maybe social workers. To those of you who have said this to me a millions times, I’m sorry for not giving it much weight. My conversation with my advisor shifted my perspective a bit which made me feel like this is more of an option than I had considered before. I am going to ask #28 to do med management. I really do not like her, but I can suck it up and tolerate her for a once a month meeting for a script. The key to my plan is her going along with this. If she does not then it falls apart. Assuming she cooperates, I have made a list of 3 possible therapists (1 psyd and 2 social workers) who seem like they could work out. I know it seems like a simple, maybe obvious solution, but I had been so stuck on psychiatrists.

I wrote a paragraph here trying to explain why I had been so stuck with psychiatrists, but it was very convoluted and overgeneralized a lot of professional degrees unfairly so I deleted it. It was really my rationalizations for something else. The simplest shortest answer is I have been trying to replicate my relationship with SM (a psychiatrist) and have been stuck on this idea that it will be more likely to occur with other psychiatrists.

My process of therapist searching

Trying to find a new therapist is a scary process. This is separate from pure professional concerns as it also includes the general vulnerability of sharing so much with someone new and the power they wield to hurt me. The process of finding one is difficult. The databases to search just do not have the information needed. Some of this is basic information (like populations served) but also there is the issue of personality match. There is nothing that can estimate if the therapist will be a good personality match. Can someone make an okcupid alternative for therapists? Have the therapists respond to questions about their therapy style, theoretical orientation and populations treated. Then clients can anonymously fill out a survey on symptoms, need in a therapy relationship and desired course of action. Then get a list of match percentages.

No one would ever want the liability. And I suppose most patients don’t know what they want until they’ve seen some who they know are what they don’t want. I can dream though.

Before my decision to branch out to clinicians other than psychiatrists my search was not going well.

I went through the entire psychiatrist data base for my insurance.

I google every therapist before considering seeing them.

Things that make me feel uncomfortable seeing someone or indicate other problems:

  • At least 2 had their license suspended in the past and reinstated. One of whom the reason for suspension was very scary and google searches indicated that this person has some really distorted body image issues (think professional photo on websites being scarily over-photoshopped). Obviously will skip those ones.

My insurance does not let me search by anything other than location and ability to prescribe. This is a problem because it means wading through tons of people who are not options because I am not the type of person they work with. This is a common problem with insurance. They make their list look bigger because they don’t give specific search terms. Also anyone who had multiple offices got listed multiple times. For some academics this meant being listed as many as 5 times because each title they had somehow generated them an extra entry in the database.

  • A ton of the list was of people who only meet with children
  • A bunch of people upon google searches clearly only handle one type of problem (e.g. Sleep)

Then we get into reviews on doctor sites. I don’t weigh the ones that are just numbers highly. Like 3/5 stars is meaningless to me. But the sites that have comments can have important and scary information. I obviously take comments with a grain of salt, but there are different types of negative comments out there.

  • If a lot of people have billing disputes that says something about the doctor’s priorities
  • I use those comments more to identify problems than identify strengths because I am wary of astroturfing
  • If the complaint seems very convoluted or is an ethics complaint that somehow was not made to an official ethics board I am skeptical of it unless there seems to be a pattern or evidence

I look on linkedin

  • How many degrees away is this person from me? I’ve decided that 3rd degree is okay (so many people are 3rd degree connections I would rule out almost everyone). But 2nd degree connection is too close.
  • For 3rd degree connections the people who know people who know the clinician also give me some information about the clinician and their connection to me. If it’s through a lot of academics that makes me more nervous. But if it’s through some of my non-researcher connections that’s less of an issue.
  • I can also estimate their theoretical orientation is they are a 3rd degree connection based on which people I know who are connected to someone they know.

I look on their website if they have one

  • I read any new patient forms they have and any policy forms. I found a ton of people with very hard nosed policies listed on their websites. Things like fees to fill out forms. That’s their first impression to new patients. I understand wanting to make the context clear but there’s a balance. Your website is your first impression. Yes people should be informed of your policies. But if your entire first impression is telling people rules and financial penalties for breaking them this makes me concerned about what it is like to interact with you. I have never no-showed an appointment (I had 2 travel related issues but these were largely outside of my control. In 11 years of therapy 2 missed appointments is pretty good) intentionally. Even if I am unhappy with the therapy I at least show up to the appointment. I don’t do any less than 24 hours cancelations. But when I see extensively detailed policies (I’m talking pages) about missed sessions it puts me on edge. Even though it is not a thing I will do, it concerns me about what this says about the therapist as a person. It makes the therapist look inflexible and cold.
  • I also find it very scary when there are detailed history forms to fill out before the first session. Some history forms can be useful I think, but there’s a line and it concerns me when the quantity of information I’d be asked to provide on a form before even meeting the person is too high. Basic demographics, presenting problem, medications, history of hospitalization, past diagnoses, fine. But there is a point where it is asking too much.
  • I’m noticing a new trend of younger therapist’s having social media policies on their website. I really like this a lot. It makes the boundaries clear and shows that the therapist is adapting to the changing world. The good ones I’ve seen explain what the therapist will and won’t do along with the reasons for it. I also like when the state that they will not look up their clients online unless it is due to an immediate safety concern. Things like this need to be spelled out and can be done in a way that is not authoritarian.

I look at the context of where the person is working. Big medical centers make me nervous.

  • This is where the line between my realistic worrys and unrealistic ones is blurry.
  • I don’t like the idea of going to therapy in a place using EMRs. I want my therapy notes and session dates on paper in a locked file cabinet. If they go on a computer I don’t want the database linked in a way that makes it part of a larger medical record. So, a private practice clinician could use a full disk encrypted computer for notes and records and I would be okay with that as long as it isn’t merged into another database. EMRs are great for some things, like saving me the trouble of needing to know when my last tetnus shot was because an ER doc already has it in the record. But with therapy is can mean things from bad therapy could stick with me even after that therapy has terminated. A diagnosis, a misunderstanding. It can follow me.
  • Going to a session at a big medical center means more people to walk past. I have a greater chance of running into someone unexpected who would then figure out I am there for therapy.
  • I do not know what my future practicum sites will be but it is fair to say any big medical centers might be on the table. I don’t want to feel uncomfortable applying somewhere in the future because of this.

Smaller therapy organizations that emphasize multidisciplinary teams also make me nervous.

  • I know that this is code for the fact that they will regularly review cases with each other and this is confirmed in privacy notice paperwork about who get’s access to what.
  • This means that in going to a place like that, instead of just sharing my information with one therapist I am agreeing to share my information with the whole practice. It may be 6 people or so, but it means losing control over my information.

I search through my gmail for the person’s name.

  • I make sure I don’t have any indication that this person is too closely connected with my work.

I check academic and professional affiliations

  • If they have an academic title at my school this is a problem. I am moving towards being more flexible if they only teach areas far removed from me, but it’s still hard to predict.
  • If they work closely with faculty at my school but do not work there this is also a problem

Through these criteria every single psychiatrist on my insurance list was ruled out.

Now that I’ve opened my search to non-psychiatrists I have options to pick from. So feeling more hopeful. But I guess I wanted to share my search process. I have this odd situation where if I had a patient (don’t have those yet) who needed a referral, I could easily generate a list of good clinicians who I know professionally. But for myself I struggle because all of these great clinicians I know are not options for me because I know them in a professional context.

I’d be curious to see how other people search for therapists. Feel free to share in the comments.

How fear of being un-masked dominates my thoughts: Hiding mental illness

I talked in the last post about impostor syndrome. I wanted to elaborate upon this a bit by showing how my thought process goes about participating in class discussions and how my fear of having my health health status discovered dominates my decision processes. This isn’t any one class but more an example of what my experiences in classes tend to be like.

Thought: I have to participate at least once each class. Ideally more, because participation is a large part of the grade.

[Professor asks question]

Thought: I have thought I would like to contribute to this, but the knowledge I have is based on readings I have investigated in depth in attempts to understand myself. Although I can respond to this question and keep the content intellectual and not personal, I worry that someone might wonder why I know so much about a niche area like this. I have to make sure the knowledge I convey all can plausibly be expected of me given my current training level. I know that for one question response it might not mean a lot but if they put together other pieces of information with my response they might start to suspect something. I’ll skip this one.

[Other student makes a comment]

Thought: I wish I could talk about the thing I am thinking of and add to the conversation, but it is not worth the risk.

[Professor discusses a diagnosis in the class which is one I have]

Though: Keep your face neutral, keep your face neutral. If a student says something stigmatizing and offensive keep your face neutral. If someone comments about frustrations relating to difficulty treating this population, keep your face neutral. Crap. I think I may have made a slight disgust face. Did anyone see? Does the professor suspect I have a personal relation with this subject matter?

[Professor asks a question related to a definition from the reading]

Thought: Good I can answer this! It falls into knowledge I am expected to know.

[I provide answer]

[I am asked to discuss my current research interests and directions]

Thought: I am doing me-search. I am very proud of the direction I am investigating, but is it too novel? Novel is good, but what if they wonder where did I get the inspiration for these novel ideas? I don’t have patients yet so I can’t claim it was inspired from working with them. What if people realize that the reason I am able to piece this research together in a unique way it is because I am using some of my experience (combined with extensive literature reviews) as a source of inspiration. I can down play the novel parts and make it look more iterative than it is but that hurts me by hiding something I can being successful at. But I need to blend in to avoid arousing suspicions.

[I discuss research]

Thought: Did I say too much? Are they getting suspicious? I should make sure I stop talking to avoid further damage.

[Class continues]

Thought: I need to watch my body language. Stop fidgeting. They’ll realize you’re anxious.

—-

Logically I know that these worried fall under the Spotlight effect, but I consider being found out to be such a horrifically terrible event that even if it is low probability I need to do all I can to protect myself.

Twitter: Open Discussion

Suppose your therapist is on twitter and the account is public and the knowledge that the patient visits the twitter is openly discussed in sessions as the account is a top google result for the therapist’s name. Neither party has linked their account (following) to the other’s account for obvious boundary reasons. But the therapist is aware the patient reads it from time to time. If said therapist writes a hilarious tweet what are the ethical and boundary issues of the patient retweeting that tweet?

I am of the opinion that it would be a boundaries issue despite the public nature of the tweets and even if the patient did not reveal information about the therapeutic relationship. It would be an uninvited entrance into the therapist’s life outside of a session. So I would not re-tweet said tweet no matter how hilarious it is.

Obviously friending a social media account is off limits but there is a fuzzier area when it come to non-reciprocal friending sites like twitter where relationships may be more one sided. The formality of the communication put out by the therapist is also a factor.

For example it is fully acceptable (I think) for a patient to share on social media about a book their therapist has written or an journal article if those works have been influential to a patients healing process. Though things could get messy if it the author is identified as that blogger’s therapist. I’d personally never do so in a way that indicated that said individual was my therapist, but sharing a professional publication on a patients social media seems fare game if context were appropriate. I suppose for me the issue that comes into play is the inherent informality of twitter. No matter how professional a twitter page is, it is still something more conversational and more personal. And for this reason I feel a retweet would be overstepping a line.

Discuss. What are your thoughts?

 

Unrelated:

From my search stats it looks like someone is trying to get into my locked posts. I locked a few posts on here for assorted reasons related to protecting my privacy. If you want access to one of the locked posts, comment and depending on your motivations I might give you access.

The more you need help the less willing people are to provide it + the intersection of work and treatment

A few weeks ago I decided to give CBT another shot. How is it fair for me to fully reject it as a treatment option for myself, when my experience with it has been so poorly applied?
I picked out a local prestigious research center and gave them a call.

I felt that maybe the failures with my previous efforts to get “real CBT” were because I was looking for treatment in the community rather than from researchers. Maybe this “empirically supported treatment” only exists in the magical world of academia. The treatment outside might share the same name, but maybe it is something different.

In the past I’ve avoided treatment research studies (even though I’ve participated in many other types of studies) because I worried about the guilt I’d feel when I didn’t get better. I don’t want to ruin their study.

I don’t talk about my work here much, both to maintain my anonymity and due to confidentiality rules. I love what I am doing and I am making amazing professional connections. It is doing wonderful things for my developing career, but not so good things for my ability to find treatment. I am very concerned about keeping my crazy separate from my professional life. Most of the people I work with are therapists.
As my therapist list grows longer and longer and my work social network also expands I’m running into increasing problems of overlap between the two. I know that both therapists number 23 and 25 in particular had some form of connection to people whom I work with. I’m sure others have had connections I don’t know about.

S.M has tried to assure me that some amount of this problem is very typical for folks working in the mental health field and that clinicians should be able to handle it tactfully. The problem is that most people only have one therapist they are awkwardly avoiding in their professional life. I have 25 and counting.
If I knew for sure, ‘ok this therapist is the last one I will ever have to see, because this therapist will be a good fit’ then I might be less concerned about the therapist possibly knowing a coworker or attending some of the same conferences as me. The problem is that in all likelihood therapist number 26 won’t be able to help me any more than the other 24 (S.M is excluded as I only left him because he’s located far away). As I see more and more therapists I cut off more and more career options. I wish I could wipe my identifying bits of information out of a therapists head after I fire them.
The ideal therapist for me would be completely professionally isolated, the problem is that someone that isolated is not likely a very good clinician.

It may seem like I got a bit off topic in the above paragraph from my thesis sentence, but here’s where it connects. Something that made this Prestigious Research Center (henceforth known as PRC because psychologists love acronyms almost as much as Unitarian Universalists) a wonderful choice for my treatment is that I have zero desire to work there. We have differing theoretical interests and this is a place that would be particularly hostile for a person with my perspective to work. I could go there as a patient and not feel like I am blocking off a future job opprotunity.

I played telephone tag for a week with PRC and finally got in touch with a fellow who conducted a phone screening interview. I prefaced the interview by letting him know that I realize I’m not the ideal person for their research, due to my large amount of treatment experience and number of co-morbid diagnoses. He said this was fine, because the research clinicians also see patients there outside of the studies.
I thought this was great. I could get the research clinician without the guilt of sabotaging their study.
He said that sometimes they do have to refer people out with certain kinds of problems that they don’t work with e.g. substance abuse. As substance abuse is not a problem of mine, I wasn’t concerned.

I became even more attached to PRC when he told me that all of their patients go through a thorough assessment prior to therapy (things like personality measures, structured clinical interview etc) with an accompanying report.
I have a large stack of neuropsychological testing, but never any formal assessment, independent of the treatment, about the rest of my crazy. If nothing else I was excited about the idea of a beautiful organized report with charts and standard deviations. I adore data. Even if this therapy didn’t work out at least I’d have a report (albeit one biased towards militant CBT research) to show future clinicians.

The phone interview lasted an hour and a half. I was told I’d get a call back from the main desk to book an appointment for the assessment. Instead the fellow from the phone interview called me back to say they were unable to work with me. He’d talked to his supervisor who told him they had a policy of not working with anyone who has had more than 2 hospitalizations in the past 5 years (I’ve had 3). Then he offered me a referral to Other Prestigious Research Center.
The problem? Other Prestigious Research Center is where I work. Not in the specific part he referred me to, but very closely affiliated with it. This isn’t just a matter of me being obsessed with boundaries where I avoid people even loosely associated with my work. This is closely related enough that it would be unbelievably inappropriate for me to look for treatment at this particular location.
I was so taken by surprise that I actually told him why I couldn’t use that referral. An unusual self-revelation for me.
He got back to me the next day with more referrals except this time for people in private practice. When I googled them it turns out they both worked at the same Other Prestigious Research Center that I have to avoid.

So my plan of getting CBT was foiled again. I called S.M. asking for a referral. I feel so awful coming back to him over and over. He has a hard time making these referrals because he doesn’t know many people in my area.

For the past couple of years he’s been trying to get me to see a “senior analyst” for a consultation. Someone too busy (or mostly retired) to take on any new patients, but who could be a fresh set of eyes for my problems and would know clinicians in my area well enough to select a strong match.
I’d been turning him down, because I didn’t want to add an extra person who knows my problems to the world unless they were someone I was planning to meet with long term. I finally agreed to give this a shot.
He told me a name and I googled her to establish sufficient separation from work. She is loosely connected but far enough apart that I can tolerate it. S.M told me he would give her a call and see if she could see me for a consultation.

It been a couple of weeks. I’m not sure what’s going on. I guess she’s not answering his call? S.M. keeps telling me he expects to hear back soon, but it hasn’t happened.
Meanwhile I’m waiting, feeling like I can’t try to pursue other options (as if I even have any) until this sorts itself out.
I’ll go to work next week where I’m surrounded by therapists, while I am still unable to find a therapist for myself.