Partial Hospitalization #1

A partial hospital program is sometimes also called a day program. You spend the day at the hospital, but then go home to sleep.

My first partial hospital program was right after my first hospitalization. I lasted two days there.
This is the program that I mentioned in my post about how they sent me someone else’s records.

The social worker in my hospitalization set up the intake at the partial hospital program for me.
I told her two requirements I had for it:
1. It needed to be an adolescent program
2. I did not want to do DBT

When the social worker informed me it was set up, she told me my requirements had been met.

When I arrived on the first day, I quickly learned neither request had been fulfilled.

I realize now that avoiding DBT in this type of program is likely an impossibility, but I’d have appreciated her being upfront with me about this. To be fair she probably didn’t know the program contained DBT. But the reason for this is probably because she didn’t put any effort to find out.

My request for an adolescent program was reasonable. I was 19. My inpatient hospitalization had been with adolescents (their cut off was age 21).

There was a group of about 6 others in the program. I was by far the youngest. Most were old enough to be my parents.
I was very uncomfortable. I listened to people complain about their children and spouses. I couldn’t relate.

At my intake meeting a ‘No Harm Contract’ was presented.
‘No way’, I said ‘I will self injure if I want to and forcing me to sign that just will force me to lie. I’d rather not need to lie.’
The contract was pushed aside to be reevaluated in the future.
I left that meeting with the understanding that I had in no way suggested I would refrain from self-injuring.

I was very angry and aggressive (verbally, not physically). Largely because I was stuck at this partial hospital program because I’d been kicked out of school and possibly also in a small part because of a bad reaction I was having to Celexa.

I was under the impression that successful completion of this program was necessary to help my return to school. Despite despising the program, I felt I needed to stick it out.

The first day was a Friday. That weekend I returned to the school to move everything out of my dorm room.
Most was removed Saturday. Sunday morning I came to retrieve the last few items and discovered another person sleeping in what had been my bed and a large bong in the bathroom.

Monday I returned to the partial hospital program. The first day I had left my sharp items at home. I wasn’t sure what I was getting into (would my items be searched?) and decided it was in my best interests to leave them at home. Monday, the second day, I came prepared with a swiss army knife in my pocket. This seemed fine based on my experience the first day.

Inpatient hospitalizations are under-structured. Too much time with nothing to do. Partial hospital programs are over-structured. One group after another. Spending the entire day dwelling on problems, because the structure prevents one from going out and doing anything enjoyable.

I was frustrated with the way the people leading the groups spoke down to us, as if the depression meant we were cognitively challenged.

During the lunch break I made a few little tiny cuts on my leg. Very minimal, close to zero blood draw.

In the afternoon I had a daily check-in meeting with a social worker. As a side note I mentioned cutting a little during lunch. I didn’t think it was a big deal to mention. I’d never agreed to the no harm contract.

I was transported into an office with another woman (someone with a higher level of authority). She demanded to see what I’d used. I handed over the knife.
A lecture proceeded in a disgusted tone, wondering how I could have possibly thought it was acceptable to bring a “weapon” (aka a small swiss army knife) into a hospital.

She demanded to see the cuts.
I refused, explaining they were minimal and did not need medical attention.
She argued that because I had done it “on the premises” she had to see them.
I continued to refuse.
“I’d have to take off my pants to show you”, I protested.
She seemed unconcerned.
I was scared and eventually intimidated into giving in.
I tried rolling up the pant leg to show the cuts, but as I’d suspected the leg wouldn’t push up far enough.
I unzipped, pulled down my pants and showed her the cuts.
I felt very violated.

“Well there’s not too much damage this time“, she huffed.

That was it. The last straw. I announced I was leaving the program.

She bombarded me with questions assessing my current suicidal risk, trying to trick me into saying something to allow them to keep me there.
I didn’t fall for it.

My knife was returned and I went home.

I still didn’t have a therapist. While making phone calls to find one, many therapists refused to see me on the basis that I’d not properly completed the partial hospital program. I only was able to get into therapy (although this was my fake therapy, because anything I said was at risk of being reported back to my school) eventually when I left out the bit about the incomplete partial program.

Closets

I like closets.

My earliest closet memory is from elementary school. I had a walk in closet. The floor contained a village of “littlest pet shop” toys. I’d sneak in at night when I was supposed to be asleep and silently act out scenarios with these toys. When finished, I’d arrange the toys to match the way they looked on the box they’d come in. However a box displayed a toy was the correct way for it to be used. Deviating from this was acceptable as long as it was returned properly in the end.
I’d also sneak into this closet and read. Reading in the closet was far better than under the covers with a flashlight.

When my family moved my brother and I argued over who would get what room. We both wanted the room with two closets. In the end I won and got that room. I don’t think my brother minded much, as the room he got was larger. I used one closet for clothing and the other I filled with pillows and blankets. It became a cozy reading corner.

In high school my mom and I had frequent arguments. Asking her to “leave me alone” resulted in the opposite effect. During a fight I’d sneak away and hide in one of my closets. I could wait safely under piles of clothing until things cooled down.

Closet-like situations are also nice. When I began self-injuring I’d do it in the bathtub with the shower curtain pulled closed. We didn’t have working locks on the bathroom doors. Being walked in on was a concern. I realized I liked the small safe space of the bathtub with the curtain closed and began closing it even when not self injuring.

My sophomore year of high school I came out of the metaphorical closet and revealed that I am a lesbian. Departing this figurative closet didn’t end my enjoyment of the literal ones.

At my first hospitalization I sat curled up in a ball in the shower stall with the curtain drawn. It was a safe feeling place for an overwhelming situation.

At my third hospitalization there were lovely wardrobe-type closets. When overwhelmed I squeezed into one and shut the door. The woman on checks walked by and said my name. I didn’t have much energy and felt too apathetic to respond. Not long after the doors of the closet were aggressively pulled open and I was forced to stay in the main lounge. The lounge was a big open space, not at all like a closet. I later learned I’d given the woman on checks a scare and felt bad about it. That hadn’t been my intention. I tried to make light of the situation by saying I’d ‘learned it’s not a good idea to play hide and seek with the person on checks’. Later, after leaving, when reading my records, I found this comment had been quoted and listed as the reason why I’d been in the closet. They hadn’t understood the soothing effect the closet had on me. I wasn’t trying to be difficult.

The following day I climbed into the closet again. When the person on checks came by and said my name I responded, letting them know I was in the closet. I figured if they knew where I was there would be no problem and I’d be allowed to stay there. It didn’t work out as intended. Instead, I was surrounded by doctors and nurses and med students asking me questions. This was the opposite effect from what I wanted to achieve. I just wanted a quiet, safe space with minimal sensory input.

In my current residence I have a quite nice closet. On occasion I’ve curled up in it wrapped with a blanket. It smells like laundry detergent, because that’s where I store it. It’s a good size. Small enough to be cozy, but large enough to not feel squished.

And that’s how I feel about closets.

I need to be heard

I need people to know what happened to me. I need people to know this happens. I want dialogue and awareness.

But I’m terrified of being blamed. There are people who will think this was my fault, not the fault of a flawed system.
These fears keep me silent.
There are so many things I can handle different options on, but not this. It is too personal. Defending them is an attack on me.

I don’t have the perfect way to tell my story. I have started so many drafts, saved on my computer, forgotten. I’m going to give bullet points a shot. I need to, if nothing else, get out the key points.

-A bit over 2 years ago I was feeling very depressed and suicidal.
-I felt terrified of myself and made an emergency appointment with my therapist so I could get help. He was a therapist in my college’s health center.
-He decided I should go to the hospital. I was not surprised by this and, though terrified, I agreed to go.
-When in the hospital he suggested I take the rest of the semester off. I said ‘no, school is too important to me’ and he said ‘well let’s see what the doctors at the hospital have to say’.
-I was feeling better and getting ready to be released. A meeting was held with my therapist, the hospital doctors and I. The hospital doctors said that when I was released it would be fine for me to return to school. I had decided I would drop a couple of classes, but that I wanted to return. My therapist disagreed with this.
-My therapist told me he was going to talk to the school and ask them to place me on an “involuntary medical leave”. He said he was going to talk to them whether or not I gave permission.
-After he left a hospital doctor told me “This is discrimination”
-After my therapist spoke with the school my parents spoke with a woman there to plead my case. They asked for her to please talk to the hospital doctors who had a different opinion. She refused, she was only interested in hearing what her employee (my therapist) had to say.
-The decision was made that I would be forced out of the school until they decided I could return.
-I moved out of the dorm and back in with my parents.
-One condition placed upon my return was to meet with a therapist and have that therapist speak with the school to discuss my return. On the surface this seems reasonable, but it isn’t. How can I have real therapy knowing anything I say might hurt my chances of returning to school? As a result, I had about 6 months of ‘fake therapy’.
-I stumbled upon a newspaper article telling about people who were in similar situations as myself. They had won legal cases against their school. I contacted the lawyers who had helped them.
-My case was taken pro-bono. They helped me file an OCR (office of civil rights) complaint. This was not a lawsuit. There were no financial damages. The complaint only asked for their policy to be changed, so what happened to me couldn’t happen to others.
-I won my OCR complaint and returned to school

Okay I’ll end the bullet points now.
It’s not such a happy ending though. When I returned to school things were not the same. I was a semester behind in a very small (40 people) program. It worked on a yearly cycle. The semester off put me a year behind and my absence had been noticed. People knew things. I don’t know how, but they did. No one knew the whole story, but there were rumors.
Based on these rumors I was harassed by my roommates who dug through my things and found my seroquel. From google searches they concluded that must mean I have schizophrenia ( I don’t) and that I was dangerous (I’m not) . They made demands to the RA wanting to be told why I had left the last year. In general they made my life miserable, trying to force me out. They succeeded. I not only left their room, I left the school.

In my new school now I’m paranoid. I extend a lot of energy protecting myself from the same situation repeating itself. I have trouble making friends because I worry if they get to know me too well they’ll realize how crazy I am and then the school will find out and somehow it will be used against me to kick me out. I know it’s illogical, but it shows how much this impacted me. I’m better informed now. Kicking me out would be hard if not impossible, but the thought terrifies me. It doesn’t help that I know this school did something similar to a classmate.
I have nightmares about this happening again. I see people who look like my old therapist and worry he’s gotten a job at my new school.
I love school and want to stay here.
It wasn’t damaging just from the lost semester. They kicked me when I was down. It damaged my ability to trust. It hurts me every day still.

If you know someone who is going through a similar situation send them here
http://www.bazelon.org/Where-We-Stand/Community-Integration/Campus-Mental-Health.aspx

Here’s an NPR story about this issue.

There’s also a facebook group I found today. It’s existence means so much to me.
I wish there were a support group I could go to with others who’ve experienced this. I feel like only people who’ve been through this can fully understand.

I want people to know they’re not alone and there are resources. When this happened to me I had no idea this was a widespread issue. It was a fluke I read that newspaper article.

Just to elaborate on some things:
-Justifying the schools actions by saying “I was a danger to myself” is not reasonable. If I had been a danger to myself then the hospital shouldn’t have been releasing me and it would have been an issue to take up with the hospital, not my school. School is for learning, not for judging my mental health.
-A major issue was my therapist’s duel roles. He wasn’t just my therapist, he was also an employee of the school. He was acting in the interests of the school, not for me.
-Another issue was my school refusing to talk to the hospital doctors. They couldn’t make an informed decision without hearing all sides.